Our Family & Congenital Myasthenic Syndrome: Mason's Care Team

1. Dr. Duygu Selcen, Pediatric Neurologist - Mayo Clinic - Rochester, MN

2. Dr. A. Noelle Larson, Orthopedic Spine Specialist - Mayo Clinic - Rochester, MN

3. Dr. Robin Lloyd, Pediatric Sleep Specialist - Mayo Clinic - Rochester, MN

4. Dr. Kathleen Barsness - Gastrologist, Children's Memorial Hospital

5. Dr. Barry Ahltshuler, Pediatrician - Pediatric Specialists of the NW

6. Dr. Kathleen Andersen, Optometry - Good Shepherd Hospital

7. Early Intervention Program - Coordinates PT, OT, ST & DT in our home each week

8. United Health Care - providing us with an ongoing case worker

9. Dr. Kim Watts - Pulmonologist, Children's Memorial Hospital

Mason's Current Status

Physical Milestones: Mason has a 60 degree curve in his spine, started walking at 18 months, low muscle tone throughout his body, modified Gower's when trying to get up from the floor, Ptosis in both eyes (intermittent), weak swallow and laryngeal penetration make drinking liquids difficult - still bottle feeding, he also has a significant speech delay but is finally learning to make sounds with his mouth
Formula Tube Intake: 600 mL Pediasure/day
Medication Intake: Albuterol, Prevacid, Ferritin
Height: 39.5"
Weight: 25 lbs

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Mason's Care Team